Thursday, April 26, 2007
Tuesday, April 17, 2007
I feel the need to add that we had carefully reviewed this particular form, the process lasting about 18 months, and added the words "please be specific" after the question.
The caregiver filled out the form. So I get to call up the caregiver and find out what is meant by the phrase "diabetic, mental" in this particular case.
And what, then, does it mean in my particular case?
And what does it mean in yours?
Anyhow. Today, I found this:
The had cordoned off my machine!!
Please pardon the second photograph, hard to judge the light from the reflective cones.
You don't want to get between me and my PepsiOne. And check out that first picture, again. See what they're advertising on the bus on the right side? Yes, that's right, Pepsi!
I've been more or less addicted to Pepsi products since I was about 12. Before diagnosis, it was regular pepsi. Since diagnosis, Diet Pepsi, although I signficantly prefer PepsiOne. It tastes much closer to the taste my system remembers from the High Fructose Corn Syrup sweetened stuff.
I leaned carefully over the protective tape and put my coins in the machine. I sweet talked one of the workers into handing the can to me. I smiled and walked away.
Tomorrow is another day. And it had better be better.
Monday, April 16, 2007
Here's Hoping for Amy
But these listings for kids needing adoption just about break my heart. Here's the local one for the Northwest Region. But enough about that.. it's this kid who's been on my mind for a while.
I bring you the lovely Miss Amy of Louisiana. (Click on the link, please.) She has diabetes (type 1). She needs a home. I'm sure the last several years have been tough for her. Many of you know what it was like to be a teenager with diabetes. Can you imagine being a foster kid with diabetes in your teenage years?
There are websites for all sorts of special needs adoption kids-for ones with cleft palates, for ones with club feet, hepatitis, deafness, dwarfisms, etc. There are even a few websites that gather up the listings for available-for-adoption children with a specified diagnosis or disorder. But none (that I've seen so far) for kids with diabetes for adoption. Texas has this handy reference available, just in case you were considering a kid with Type 1 diabetes and had no idea what you might be getting yourself into.
Here's a link to the Louisiana Adoption Services page, if you need more information or wish to contact her worker. (I didn't ask anyone's permission before posting this, so I may get my hands slapped for it. It's a fine line to walk between seeking an appropriate adoptive family for a kid and advertising her like a laundry detergent. And the kids are deserving of respect and privacy. And here I am blogging about her. Talk about loss of dignity.)
If you're considering adoption, can you consider Amy? Or is there someone in your circle of friends who could be Amy's new family? I'm praying for her. Is there some way that the community of PWDs could support Amy? (Can we get her on dLife?) We'll have to think and consider this one.
Here's hoping for you, Amy! Hang in there, girlfriend. Keep on testing!
Thursday, April 12, 2007
Things are cooking!
Tuesday, April 10, 2007
Learning from history
Thusly, I have prepared a small sample of what Scott optimistically calls my meal plan, or perhaps lack-of-planning would be more accurate in this particular illustration.
Sunday night dinner (Easter, as you recall, a traditional feast day):
French Toast, prepared a la waffler. Yum, yum. With peanut butter and margarine, and (real sugar) berry syrup and (non-sugared) maple-style syrup. Oh. And one fried egg. I ate five pieces.
Lunch, in case you were wondering, was with our friends over at Russell Street BBQ. God bless Sharon and Diane. And, let me state, that we do consider beef and pork barbeque to be an excellent celebratory meal. We did decline dessert. I must confess, though, to an intimate familiarity with the dessert menu offerings. My favorite? The fried pies, filled with chocolate ganache.
Monday morning reading: 192
Monday activity: Sincere repentence.
Monday night dinner: Homemade salsa & corn chips and minestrone soup. Corn chips, under most circumstances, send my readings sky high. I do my best to resist the evil ones (fried) and choose only the half-evil ones (baked). Couldn't find them on Monday.
Tuesday morning reading: 117
Perhaps I should visit Scott's nutritionist.
I'm back to OHSU tomorrow, for a visit to the pain psychologist and to the MRI lab. This should be interesting.
I'm not trying to fall off the wagon. I currently weigh 185 lbs, when I started the year at 170 or so. I'm very out-of-control with my eating, very worried and anxious. Time to reign in, reassess. Or, as Scarlett says, "Tomorra is another day."
Thursday, April 05, 2007
The support staff was wonderful, great receptionist, great nurse. Each of the rooms, while still quite small, was equipped with a tiny computer , with a keyboard and screen on an articulating support arm. The NP kept typing, preparing my file. She went out and consulted with the MD, and they both spoke with me briefly.
Bottom line: some adjustments to my meds (less tylenol, more nortriptylene), an MRI exam for each foot (check on nerves, muscles & fascia), a visit to the neurologist and some nerve conduction studies, and a meeting with the psychology pain specialist, and then back to NP to regroup, hopefully in about three weeks.
It sounds as if they think my foot pain is, plain and simple, diabetic peripheral neuropathy. And it's just bad luck, and it's just because of my diabetes. And I'll just have to find the best way to control/endure/live with the pain and find alternate ways of exercising.
Perhaps I'm reading into what little signals I got today.
I recognize that my pain seems 'nervy' in origin. I know that pain that's worse at night and pain that is bilateral are both associated with diabetic neuropathy. But I'm hopeful that there is some other explanation and some other solutions. I'm not sure I'm ready to begin to accept the diagnosis of diabetic neuropathy.
Wait and see, wait and see.
PS. I went to see my acupuncturist this evening. I didn't intend to tell him about my earlier post about last week's painful session, but I did. He was pretty nice about it, and I think he'll actually let me come back. This week's session was MUCH LESS PAINFUL! I actually did get to relax, rather than just lie there, tense. I owe him a big, big flattering and positive post. Overall my experience with him has been GREAT and I would recommend him to anyone who asked. Oh, and maybe next time, he'll get pictures of my feet with all their little needles and jumper cables. Something to look forward to!
Tuesday, April 03, 2007
The Soap Opera of Diabetes
Apparently, Group Health, the folks through whom my (paternal) grandparents got their healthcare for many years, has partnered with Seamar, a local community health service that serves the Latino community and produced a spanish-language soap opera, delivered over the radio. And the soap opera has diabetes woven into it. It's a health education message, delivered in a culturally relevant medium.
I applaud this effort. Since many Latinos will be affected by diabetes, any effort to give them tools to know about it, recognize the symptoms, and, after diagnosis, control the disease is a good one.
I wish the article said more about how they used the diabetes information in the plot and what results they're hoping for.
Let's hope they're working on the other part of the problem, providing the healthcare to folks who have their diagnosis. It all has to work together.