Very Old, Very Healthy Diabetic

...or die trying.
I was diagnosed in 1998 at the age of 33 with NIDDM or Type 2 diabetes. I come from a diabetic clan. I even married a diabetic. Are you on the diabetes road, too?
This is my goal: to become a very old, very healthy diabetic by day to day choices regarding eating, exercise and medical management. Walk along with me...

Sunday, February 04, 2007

Allison & Joplin

I hate Allison. Well, not true. I don't hate Allison. I hate Allison's idea for the OC New Me challenge. Because I am waaay up on my weight numbers. I think they swapped out my diuretic (really, it's for the blood pressure, not for weight loss) and put in a fake one. My number this evening was 183.2 lbs. Curses.

However, I believe that Pod #2 has given us the correct diagnosis for the foot issue.

Apparently, I have Joplin's Neuroma. Or, as the scientists put it, perineural fibrosis of the proper digital nerve to the hallux. And I have it in both feet. So put 'bilateral' in front of that big long latin sounding phrase, and you have it. Also, you can substitute 'compression neuropathy' or 'entrapment neuropathy' for the phrase 'perinural fibrosis', and still be correct, I think.

Pod #2 injected lidocaine solution into each foot, specifically into the nerve she believed involved. She then had my try and trigger the foot pain. I squatted, resting all my weight and balancing on the balls and toes of my feet. (Hyper-extended? I don't know the correct term.) This would normally trigger severe pain within two or three minutes, which would then last for days.

The good news is: I think Pod #2 has nailed the diagnosis. Pod #2 also spoke very highly about Pod #1, so I can go back to Pod #1 for treatment options. Also, correct diagnosis allowed the acupuncturist to adjust his treatment, and the feet feel much better.

The bad news is: damage like this to the nerves is, apparently, very difficult to actually heal. Also the delay in correct diagnosis, may have allowed the fibrosis to progress. The fibrosis, scar tissue, can almost strangle the nerve. Also, there is very little information on this particular location of neuroma on the web; most information is about Morton's neuroma, which is further in between the toes. (And yes, I found this article, and this site, too. Great site, I must say, but not specific information about the Joplin's neuroma.)

So, treatment options: surgical removal of the neuroma. Also, alcohol injections to damage/calm/cauterize the nerve. (Couldn't they use Botox for this, I wonder?) They may adjust the orthotics further. I'll also ask if the medications should have any adjustment, now that we know the nature of the source of the pain.

I'm troubled by surgery and by the injections to damage the nerve. Although I'm very attracted to life without pain, and to regaining at least a normal activity level for a person my age (41), I'm deeply troubled by the idea of deliberately creating numbness in a diabetic foot. Wouldn't that just set me up for trouble in future years (hopefully 20 or so)? We shall see. We shall see.

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  • At 11:50 PM, Blogger Allison said…

    Way to scare the bejeezus out of me, Lori!! Sheesh!

    Hope your foot feels better.

  • At 2:39 AM, Blogger Chrissie in Belgium said…

    Gosh Lori - it is SUCH a bummer when you have to figure which treatment is best..... Yeah; I too would be troubled about surgery and the injections to damage the nerve..... particularly for a diabetic! Pls keep us informed of what you have decided to do.

  • At 7:21 PM, Blogger George said…

    I hope your feet get better and you are not alone on the weight thing if it makes you feel any better.

    I honestly was late to work the other day because I could not button my pants. How sad is that?

    Keep on pushing! We will get where we want to be!


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