Numb Toes make for good books
These are sensible, specific, and direct. The books use enough technical language accompanied by enough explanation that I, with my high-school biology remnants tucked away in my brain, can understand it. And I may be able to talk to my physicians rationally. If only I had found these books last summer!
But I cannot dwell on what might have been. I must deal with what is.
I have an EMG study scheduled at the big medical school hospital in June. The descriptions I've read of EMG tests make them sound very similar to acupuncture. What fun! I hope I don't get a student.
The online description of the Mr. Big Neurologist, who I finally see in late July, does not mention peripheral neuropathy. Instead it mentions ALS (Lou Gehrig's disease or Amyotropic Lateral Sclerosis-and I typed that all by myself without looking it up. Hope you're impressed.) which is the disease that took Dr. Parts' mom, Karen. I'm sure he knows what he's doing. But the coincidence, that he was likely involved in making her diagnosis or in her treatment plan, and that I'm now referred to him, makes the hairs on the back of my neck stand up.
And having seen ALS and Diabetes Mellitus both close up, I'd still choose Diabetes Mellitus, even with Peripheral Neuropathy.
I feel pretty angry that neither my podiatrist, nor my internist raised the possibility of neuropathy when I presented with kinda classic symptoms: bilateral (or symmetrical) pain and pain that was worse in the evening or overnight and interfered with sleeping. Were they just being optimistic when they steered me towards finding a solvable mechanical problem with my foot? I don't know.
I don't like going to so many medical appointments, and neither does my employer. I'm having a fairly good week, pain wise. I'm a little concerned about how much money my medical care is costing our family this year, but this will all work out, I'm sure. Not treating my pain is not a good choice, and worrying about the cost of treating my pain is not useful. I'm worth it.
Thanks for letting me vent. I love being able to blog here, although I will admit to being somewhat self-editing, due to the fact that both of my parents do read the stuff I write here.
I know, in a perfect world, since we're all adults now, I could say ANYTHING to my parents and it would be okay. But I'm not perfect. They love me, and I love them. We're not too angry with each other. I like that. I'd like to keep it that way. And I'm sure they understand.
I love you guys. All of you.